I was diagnosed with Charcot Marie Tooth (CMT) at 18 months old. CMT is a degenerative neuromuscular dirorder that effects the myelin sheath around the nerves. Motor signals don't get sent as well to the muscles, it bt becomes harder to use them, and eventually you forget what it was ever like to use them. CMT gets progressively worse and starts at the fingers and toes and works its way up over the years. I still have some function in my shoulders, hips, neck, and torso, but I can't use any muscles in my legs or arms.
Things my specific type of CMT affects (We think it's all related)
My vocal chords are partially paralyzed, so my voice sounds like the bastard lovechild of Gollum and Darth Vader.
My eyeballs are broke. My vision without glasses is about 20/300 without glasses, 20/100 with. I'm legally blind.
My diaphragm is slightly weaken, so I can't breathe in or out as strongly
and pretty bad stress, anxiety, and depression from all this and knowing it's going to get worse.
The cool ways I adapt and cope
I use the tip of my nose to use phones/tablets/anything with a touchscreen. It works really well (especially since I have to be that close to see the screen anyways), and I use a toothbrush in my mouth to type on a regular computer.
Playing video games is fun, and I play Overwatch a lot with @Zeus I sit on the floor in front of the monitor, use a mouse on the floor on my right (moving and clicking buttons with my palm), an xbox controller on the floor in front of me (using the left joystick to move/click in for an ability), and the toothbrush keyboard method to type/hit keys for abilities etc.
I try to deal with all the anxiety and depression by throwing myself into working on RarezHut. I know I must seem to a lot of people that I only use MH to mostly promote RarezHut, but constantly working is how I stat (mostly) sane.
I wouldn't be here today if it wasn't for @Biopanda though. He works as my caregiver, co-owner of RarezHut, and my best friend in the world. We've been roommates and he's been helping me since 2008, and I'm surprised we haven't killed eachother yet since we see eachother every day all day. Every day he helps me get dressed, eat meals, take a shower, even as simple as grabbing something from across the room. Panda has been there at my darkest moments when the weight of everything and the knowledge that there is no light at the end of the tunnel causes me to just collapse into a quivering mess of tears.